Why we started CureCollab
The sale of de-identified patient records alone generates $8 billion a year — part of a $50 billion healthcare data economy projected to reach $134 billion by 2033. Patients fund it with every hospital visit, every lab result, every prescription. Health systems license it. Brokers resell it. Pharma profits from it. Everyone has a seat at the table except the one person who made it possible — you. We built CureCollab to change that.
Your consent, your control
When you consent to one organization, they decide everything. A single health system controls whether your data advances their internal research, gets licensed to a competitor, or sits unused for years. CureCollab breaks the silo — putting your informed consent to work across the organizations best positioned to cure disease.
Traditional Health System
- You consent once — then the institution decides everything
- Your data may be used for their proprietary drug pipeline, never shared with the broader research community
- Health system and commercial partners profit. You receive nothing
- No visibility into how, when, or by whom your data is being used
CureCollab Platform
- Your consent is offered to a vetted network of pharma, biotech, and AI research organizations
- Researchers compete to access your cohort — driving research speed and returning value back to you
- You earn a Community Dividend continuously, plus a Cohort Payout when your profile matches a study
- Transparent access — you can see who uses your data and for what purpose
- Revoke anytime. Your consent is truly yours to give — and to take back
Where your data goes today
When you consent to a health system, your data enters a pipeline you can't see or control. One institution decides who gets access, when, and for what purpose. Dozens of qualified research teams working on the same disease may never see it.